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World CDG Awareness Day 2024

World CDG Awareness Day is an annual event that provides international focus for patient groups and families living with CDG. It is an opportunity to raise awareness, influence change, promote timely disease diagnosis, and improve access to better standards of care and management. World CDG Awareness day is celebrated each year on May 16th – the birthday of Dr. Jaak Jaeken who reported the first CDG patients in 1980.